Oneida Nation Collaboration
Learn more about Oneida Community Advisory Board, from member, Florence Petri!
Oneida Community Advisory Board
Specific Aim 1: Continue the Oneida Alzheimer’s and Related Dementias Community Advisory Board “Oneida Alzheimer’s CAB” to guide a culturally tailored outreach, education and research.
Specific Aim 2: Reach middle-aged adults, military Veterans and youth with Dementia Curriculum.
Specific Aim 3: Work to reduce stigma associated with Alzheimer’s and Related Dementias by providing outreach and education.
Specific Aim 4: Continue efforts to optimize access to culturally competent dementia diagnostics.
Research collaboration
UW scientists are encouraged to seek input from the Oneida Community Advisory Board (CAB). Board members are available to review and advise on studies to help them be more inclusive of Indigenous people and ensure results from research are more relevant to diverse populations.
If you have questions about our program and would like to reach Oneida CAB, please email Lexi Nelson at lnelson@medicine.wisc.edu and Tracy Smith at tmsmith6@wisc.edu.
Oneida Helping Oneida
The Oneida Nation has a number of excellent supportive services/resources available to support persons with dementia and their family members who provide assistance to them. However, the Oneida Alzheimer’s Disease Community Advisory Board has identified that many families that are unaware of all the resources available. This project aimed to identify factors that influenced awareness of these services and determine whether community members view them as consistent with traditional cultural values. This study used a tribally led, community-based approach to analyze information on caregiving status, awareness of caregiver resources, sources of information about available services, and beliefs about whether participation in these services aligns with traditional culture. This study found that caregiving was common, as nearly half of the participants were current caregivers for an older adult, many caring for someone experiencing memory loss. The awareness of resources varied across groups, current caregivers, older adults, and people living on the reservation generally had greater awareness of available resources. Perceptions of whether service aligned with traditional cultural values varied by resource type. These findings highlight the need for culturally relevant outreach and support programs to improve resource utilization among Oneida family caregivers.
Study PI: Mary Wyman, PhD
Read the full Oneida Helping Oneida (OHO) Report or the OHO Handout for more information.
Publications
“Awareness of family caregiver resources and alignment with traditional culture in a Midwest tribal nation in the United States”
Wyman, M.F., Lennon, D.B., Montoure, J., McLester-Davis, L.W.Y., Hammock, C., Lambrou, N., Lawrence, S., Miller, D.A., Petri, F., Zuelsdorff, M., & Gleason, C.E. (2026). Awareness of family caregiver resources and alignment with traditional culture in a Midwest Tribal Nation in the United States. Journal of Community Health. https://doi.org/10.1007/s10900-026-01589-4